just donât give a shit about me, Lord!
I limped in the car about three miles down winding country roads to Brewster Mobil, in a Tourretteâs of swears the entire way.
âGot a problem,â I told the attendant abruptly. âFix it.â
The sympathetic attendant, a kid who had graduated from high school years ago with one of my sons, said dutifully that heâd patch the tire right awayâworking his pliers to pull out the obstruction that had sent me into chaos. He returned in short order.
âYou might want to look at this,â he told me.
I stared intently at the culprit with astonishment. I couldnâtbelieve what I saw.
âBelieve it,â he said.
The culprit was a small, narrow piece of scrap medal, bent into a cross.
A perfect cross.
4
H EADING O UT T O P LUTO
M Y PRIVATE DARKNESS IN ALLEGORICAL TERMS IS PLUTO , a reference from my early days as an investigative reporter when I went deep âoff-the-recordâ with sources. âWeâre heading out to Pluto,â I would say, âwhere no one can hear what is said.â
The Pluto metaphor still works for me, more than ever, as the urge to drift out in Alzheimerâs overcomes at intervals. As noted in the preface, Pluto, previously known as the ninth planet, about 3.1 billion miles from Earth, is relegated now to âdwarf planetâ status, a sixth the mass of the moon and a third its volume, a âplutoid,â given it is one of the bodies within the Kuiper Belt, a dense cluster of rock and ice. All the more isolated today for off-the-record talks. It is a fine place to get lost metaphorically. Plutoâs orbit, like mine at times, is chaotic; its tiny size makes it sensitive to immeasurably small particles of thesolar system, hard to predict factors that will gradually disrupt an orbitâthe perfect place to have a conversation that ânever existedâ or a conversation one canât recall. Over the years, I have often taken close family, colleagues, and clients âout to Plutoâ to discuss unmentionables of life, revelations, and comments that need to stay in a place without oxygen. Many have been there and back with me, allegorically. I want them to be familiar with the planet. One day, like my mom, I wonât return from this dark, icy place, and I want my family and friends to know where I am.
Then, as Iâve learned from observing my grandfather and mother, itâs off even further beyond Pluto to Sedna for the final journey, the end staging of Alzheimerâs. Sedna, a far more desolate place, the so-called dwarf tenth planet orbiting the sun beyond Pluto, was discovered in 2003. It is the coldest, darkest, most distant known body in our solar systemâ84 billion miles from the light of the sun, with an exceptionally long and elongated orbit, taking approximately 11,400 years to complete. Itâs a place where the temperature never rises above minus 240 degrees Celsius, minus 464 Fahrenheit.
Thatâs consummate isolation; the word picture helps me relate. Distant heavenly bodies are far less intimidating to me than the realities of the end stage of Alzheimerâs. Completion of the journey brings one to a far better, more peaceful placeâHeaven, or however you want to define it. Family is waiting for me there, and there are days I canât wait to join them.
In the meantime, I see a lot of smart doctors and counselors with a range of connections to top Boston area hospitals and an assortment of coping mechanisms. But I crave the simple touchâan earnest smile, a hug, a touch of the handâfar more than a medical prescription or a clinical trial. A simple touch increases body awareness and alterness for those with Alzheimerâs, and reduces feelings of confusion and anxiety. My general practitioner, Dr. Barry Conant, a close friend, an extraordinary man, and a better golfer than I, has offered the best advice todate. He has urged me, on