Thomas was being prepared for his neurosurgery, which would hopefully reduce his convulsions.
Charles Drury had come to join them as he would be in charge of the operation, with Annabel and Mark Lafferty assisting.
When Aaron had suggested the operation to the boyâs parents heâd had to warn them that there would be no guarantee of success. Yet theyâd still told him to go ahead as the frequency of the convulsions and Oliverâs violence towards anyone near him when they occurred was creating a situation that was unbearable for all concerned.
And now it was the day of his operation and hismother and father would have many anxious hours of waiting ahead of them, which might end with an improvement in Oliverâs condition, or the boy being in a worse state than before...
When they stopped at the next bed Aaron said in a low voice, âWe have ALD here. Itâs rare, genetic and often incurable, as we all know. The family are devastated, needless to say. I saw young Jack here in my clinic. His GP had sent him to me with severe vomiting, low blood-sugar levels and periods of unconsciousness. We did some tests, discovered that the adrenal glands werenât working properly and diagnosed adrenoleukodystrophy.
âYouâll maybe remember the film Lorenzoâs Oil where the parents never gave up trying to find a cure for their son who had this same genetic disorder. Eventually they found a combination of oils that lowered the fatty acids in the blood, which is vital in delaying the progression of ALD.
âThe medical profession has never been sure whether it works or not, but the couple in the film were adamant that their son did show some improvement, and though it was many years ago, as far as I know heâs still alive.
âWhen the illness has been diagnosed in its early stage, a bone-marrow transplant has been an option and I think we should consider it in Jackâs case, if we can find a suitable donor. In the meantime, Iâm putting my faith in Lorenzoâs Oil.â
Charles Drury nodded.
âWeâre keeping him under close observation at the moment,â Aaron told them, and with a smile for the boy and a gentle pat on the head, they moved on to the next bed.
Aaron was aware of Annabelâs gaze on him and itwas softer than it had been during their earlier greeting. If he couldnât get it right in their private lives, at least they were in tune here at Barnabyâs, he thought with spirits lifting.
* * *
As the day took its course Oliver was taken down to Theatre with a last hug for his anxious parents and then the waiting began.
As the surgical team scrubbed up Annabel was tense and totally focused. Sheâd specialised in paediatric neurological problems, but the decision to operate had been made by Aaron and Charles Drury before sheâd come to Barnabyâs and the main anxiety was going to rest on their shoulders.
It was a no-choice situation if Oliver was going to have any quality of life, but what they were planning to do was dangerous. If he came through the operation successfully, they would discover in the days that followed if it had been worth taking the risk.
On occasions such as this every other thought was put to one side. In their hands lay a childâs life. She knew only too well that there was nothing worse for a doctor to leave at the end of the day knowing that a life theyâd tried to save had been lost.
* * *
It was evening. Oliver had come through the operation and was now in the recovery unit, but Aaronâs expression was still anxious as he stood beside his bed.
âSo far so good, eh, Annabel?â he said as she pushed a strand of hair back off her brow. âIâll want to go and bang my head against the wall if thereâs no improvement after this.â
âAt least weâve tried,â she told him with a tired smile. âWeâve done all we can. Letâs hope that nature